Reminiscence of Charlotte Figi


Charlotte Figi started a CBD movement.

In 2014, Charlotte's story became better known when it was told in the documentary grass. Dr. Sanjay Gupta – a neurosurgeon and chief correspondent from CNN – We started as an introspective mission from Gupta to better understand cannabis. Dr. Sanjay Gupta wrote an article in 2009 entitled "Why I would vote no for Pot"; Obviously, he wasn't pro cannabis at the time. However, during the development of weed, Gupta made his way around the world and met with medical experts, cannabis advocates and breeders, and patients who use cannabis to relieve their symptoms. In an article for CNN that he wrote while working on his film, Gupta explained how his view of cannabis has changed through the creation of weed. Before working on the film, he said that he agreed with the majority of the doctors (at the time) in their opinion that cannabis had a high potential for abuse, little to no medicinal properties. Dr. Gupta cited meeting Charlotte and hearing her story as a catalyst to change his mind, and a jump to hear the stories of thousands of other people like her.

Since then, marijuana laws have changed worldwide. Many countries have fully adopted legalization not only for medical purposes, but also for recreational purposes. It's hard to exaggerate the incredible role Charlotte and her family have played in this transformation since the start of their journey.

Charlotte's forecast was never good. People with Dravet syndrome, a form of epilepsy, suffer from developmental disorders, seizures, and a shorter lifespan to varying degrees. Charlotte and her family were told that she would probably not make it past the age of eight. Still, Charlotte and her family never gave up hope and refused to be defined by the disease.

In her short time here, Charlotte was the light in so many lives. The Stanley brothers – creators of Charlotte's web and friends of Charlotte and her family – posted the following on their website in the memorandum:

“Inspirational is a missing word, as well as brave and lively and strong and beautiful. It was divine. It grew, was cultivated by a community, protected by love, and urged the world to witness their suffering so that they could find a solution. She got up every day and woke others with her courage and smile that infected your mind at the cellular level. "

A turn for the worst

In March 2020, the Figi family shared a number of symptoms that were uncommonly similar to the COVID-19 coronavirus that had occurred worldwide this month. They suffered from fever, breathing problems, stomach problems, cough and pain. Of course, they were concerned that they had signed COVID-19. The family recovered, but the disease worsened Charlotte's seizures.

On March 26, Charlotte's mother Paige wrote on her personal Facebook page:

"I start to feel better, start to smile again and can see some light through the end of my dark tunnel … Charlotte has been parked in her arms for weeks, her favorite place."

A week later, Charlotte's father Matt announced that the family had largely recovered, but Charlotte Figi had not. He explained:

"She had a couple of days when she seemed to turn the corner, but then she dived. We have used all of our tricks from the past few days, but nothing worked…. In all the years I've worked in facilities and in the field, I've never felt so helpless as in their last tough days. "

Charlotte was taken to the hospital, where she tested negative for the coronavirus. Her condition began to shift between recovery and decline. It only seems to make it better when symptoms – and seizures – reappear. She was finally released from the hospital on a Sunday because she appeared to be doing better. The following Tuesday, however, she had a seizure and was taken back to the hospital. Tragically, she died that day with her loving family around her.

A family friend's post, hosted on Paiges Figi's Facebook, read as follows after her death:

"Charlotte no longer suffers. She is seizure-free forever. Thank you for all of your love. Please respect your privacy at this time. "

Charlotte will be very much missed by her parents and her siblings Matt and Chase.

Charlotte's legacy lives on

Charlotte's medical cannabis success and story catalyzed her mother Paige to found two nonprofits: Realm of Caring and Coalition for Access Now.

On their website, Realm of Caring's mission statement is: "Strengthening individuals, medical professionals and the community through research-based education about hemp, CBD, medical marijuana and THC". Realm of Caring focuses on three key areas: community, education and research. Realm of Caring provides funding and helps research cannabis. The aim is to educate people and users of cannabis through education, to find the products and medicines they need, and to help health professionals keep up to date with the latest treatment options and research results. They also state that they are trying to spread the facts about cannabis through community engagement.

Paige's other nonprofit is Coalition For Access Now. Coalition For Access Now is a nonprofit organization that represents families who want to raise awareness and awareness among the general public and legislators about natural antidotes, therapies, and treatment options from cannabis. They stated on their website:

"As families whose children suffer from debilitating health problems and who have experienced the benefits of these treatments firsthand, we want to raise awareness and promote measures that lead to better access for those in need."

They explain that they have a central mission: “To strengthen families and give them access to hope NOW!”. Their website states that they are trying to act as a network for anyone who wants their voices to be recognized by governments at all levels

The Coalition for Access Now ultimately endeavors to end families facing the "devastating decision" to deteriorate their child's health and become a "medical refugee" (where they have to leave their home states and cities to To get access to the medical treatment they need to receive).

Thank you, Charlotte

Thanks to Charlotte and her inspiring history, Charlotte's Web Medical Access Act was proposed in 2015 by Congressman Scott Perry (R-PA) with 18 co-sponsors from both Democrats and Republicans. The legislation aimed to amend the law on regulated substances and to exclude plants rich in CBD and cannabidiol from the definition of cannabis and marijuana. The bill was amended again in 2017.

They also proposed a bill in the Senate, bill p. 1008, amending the regulated substances law to differentiate CBD and CBD-rich plants from marijuana.

In 2018, the U.S. Senate passed the Farm Bill (also known as the 2018 Agriculture Improve Act), which for the first time removed the CBD from the Controlled Substances Act.

In 2018, thanks to Charlotte, her history, and her parents' efforts, the U.S. FDA legalized a CBD-based drug called Epidiolex to treat Dravet syndrome.

Continued inspiration

For many, Charlotte is a symbol of strength and courage; an innocent girl with a terrible illness, who faced all her difficulties with grace and joy. Charlotte Figi is also a symbol of change for people who are committed to alternative health treatments that may be outside the standard range of current conventional medicine. Charlotte Figi emphasizes the importance of politicians, doctors and lawmakers being open to treatments that may be associated with stigma, such as: B. Cannabis.

Charlotte spent her time riding a tandem bike with her mother and playing with her twin Chase, who loved giving Charlotte manicures and painting her nails. She will be missed very much.


Beth Edmonds